Charity Support

  • The Dystonia Society
  • 2nd Floor
  • 89 Albert Embankment
  • London
  • SE1 7TP
  • Tel: 020 7793 3651

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Email: info@dystonia.org.uk

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About the CONDITION

Dystonia is a neurological movement disorder involving uncontrollable and sometimes painful muscle spasms caused by incorrect signals from the brain. This forces the body into twisting, repetitive movements or abnormal postures. It is not curable but in the vast majority of cases, dystonia does not shorten a person's life span. Dystonia which starts in adult life usually remains focal to one part of the body. If dystonia starts in childhood, it tends to spread across multiple parts of the body.

Although there is currently no cure for dystonia, there are several widely used treatments. Many treatments are very successful but depend particularly on the type of dystonia and the age of onset. Because dystonia is such a complex and 'individual' condition, the usefulness of all these treatment options can vary widely between patients.