Member Spotlight: Dystonia UK

Brain Awareness Week 2024

During Brain Awareness Week 2024, we will be highlighting some of our fantastic member organisations.

Today we are highlighting Dystonia UK.

What is Dystonia?

Dystonia is a neurological movement disorder, estimated to affect at least 100,000 people in the UK. Dystonia is caused by incorrect signals from the brain resulting in uncontrollable muscle spasms that can affect any region of the body. Dystonia is a lifelong condition which can affect both children and adults and currently has no cure.

Who are Dystonia UK?

Dystonia UK is the only UK national charity dedicated to helping people living with dystonia. First established in 1983, we exist to give hope and support to the community and to raise awareness of dystonia. We provide information & support, support research, run awareness raising campaigns and advocate for our community nationally.

We think dystonia matters because:

• An estimated 100,000 people in the UK have dystonia.

• People with dystonia deserve improved access to treatments.

• There is still no cure for dystonia.

We are here for everyone living with dystonia.

What support does Dystonia UK offer?

• Local support groups

• National events

• Online webinars

• Members’ magazine

• Information resources including a detailed website, booklets and animations for children

• Dystonia Matters Podcast

How can people contact Dystonia UK?

Email: info@dystonia.org.uk

Telephone: 020 7793 3651